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      <image:caption>Ready, set, let’s go.</image:caption>
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      <image:title>This is Today Gallery</image:title>
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      <image:title>This is Today Gallery</image:title>
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      <image:title>This is Today Gallery</image:title>
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      <image:title>This is Today Gallery</image:title>
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      <image:title>This is Today Gallery</image:title>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066849486-SMW9FPABZ29ZSJM0W95O/Copy+of+091420_021.jpg</image:loc>
      <image:title>This is Today Gallery</image:title>
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  <url>
    <loc>https://www.milasmiracle.org/a-tribute-to-mila</loc>
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    <priority>0.75</priority>
    <lastmod>2021-01-25</lastmod>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/home-1</loc>
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    <priority>1.0</priority>
    <lastmod>2025-06-02</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1644270720955-SP3ZME16IHXFYAQJYC26/MMF+Web+Banner+-+canva+4.png</image:loc>
      <image:title>Home</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/5883d1ab-c523-4738-9c5f-83337f5047f8/STAT-Genetic+Surgery+Op-Ed+Media+Mashup.png</image:loc>
      <image:title>Home - Make it stand out</image:title>
      <image:caption>Julia Vitarello with her daughter Mila in Longmont, Colo. Mila died in February 2021 at age 10. PHOTO CREDIT: JEWEL AFFLERBAUGH</image:caption>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/3de1766c-cf39-4394-a957-17abc1154085/802e0ca5-6a2d-4fb6-b449-54974d07b0a8.jpg</image:loc>
      <image:title>Home - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1483661118096-PTFU1WECY5YI9WGZSDUW/makovec_127.jpg</image:loc>
      <image:title>Home</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1483661182730-YX6QVFIUZPZQQRQVLAAW/image-asset.jpeg</image:loc>
      <image:title>Home</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066864602-OYYZWV287CYXDTM3E54K/lifeproject__046+%282%29.jpg</image:loc>
      <image:title>Home</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1483589148047-Y5U5NMCM7S4M8LPOKLX2/image-asset.jpeg</image:loc>
      <image:title>Home</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1618410288240-IAB6UMRG0G26Y8JCWB91/New+MMF+Logo_Gray_LG-FINAL.png</image:loc>
      <image:title>Home - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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  </url>
  <url>
    <loc>https://www.milasmiracle.org/what-is-batten-1</loc>
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    <priority>0.75</priority>
    <lastmod>2022-02-23</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1483384166703-C74TBXA276VHG2J6L51Z/makovec_053_dark.jpg</image:loc>
      <image:title>About Batten</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1482905592425-1ORKFNH9IT56BG7PNR9O/makovec_104.jpg</image:loc>
      <image:title>About Batten</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1581101081674-6T1UAUON78NOFZYLEMX3/Living%252BBatten%252BLogo.jpg</image:loc>
      <image:title>About Batten</image:title>
      <image:caption>www.livingbatten.com</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1581100180763-QXRUQS4JDCNC3J93RFHK/neurogene_logo.jpg</image:loc>
      <image:title>About Batten</image:title>
      <image:caption>www.neurogene.com</image:caption>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1482910666962-5SWGSMFMSP24F6HE8YGW/image-asset.jpeg</image:loc>
      <image:title>About Batten</image:title>
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  </url>
  <url>
    <loc>https://www.milasmiracle.org/contact</loc>
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    <priority>0.75</priority>
    <lastmod>2017-07-20</lastmod>
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      <image:title>Contact Us</image:title>
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  </url>
  <url>
    <loc>https://www.milasmiracle.org/milas-story-1</loc>
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    <lastmod>2022-02-02</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/f9ca8664-d69f-4d94-9ab4-aacd666f9b93/PICT4589.jpg</image:loc>
      <image:title>Mila's Story - MILA'S LIFE BEGAN WITH JOY...</image:title>
      <image:caption>November 5, 2010. Mila came into this world pink and perfectly healthy. It was the best day of our lives. She nursed until she was two, slept like a little rock, ate like a champ and met every milestone before her peers. She walked at one and was talking up a storm by 18 months. We would tell her wild tales of mushroom fairies and talking animals and she would finish our stories in excitement. Mila was a talker, a singer, a go-getter. No snow was too deep to hike in, no rock too tall to climb, no field of grass too thick to run barefoot through. She came into the world strong and radiant and grew up to be an energetic, giggly little girl.</image:caption>
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    <image:image>
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      <image:title>Mila's Story - THEN, THINGS CHANGED</image:title>
      <image:caption>At three, we noticed she was getting stuck on words and one foot was slightly turned inward. When she was four, she started to pull books in close to her face. At five, she would occasionally fall backwards and move her feet in an unusual pit-patter. We kept asking ourselves what was happening to our daughter? We had her assessed by neurologists, ophthalmologists, optometrists, orthopedists, and speech, vision, occupational, and physical therapists. Some therapies seemed to help, but the peaks didn't get higher and the improvements wore off. No one could pinpoint what was wrong. When she turned six, everything got precipitously worse over a matter of weeks.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/7e39b760-4704-4daa-806c-65d8f6cb2a1c/Screen+Shot+2016-12-26+at+7.36.16+PM.jpg</image:loc>
      <image:title>Mila's Story - Finally, a diagnosis</image:title>
      <image:caption>In desperation, we brought Mila to Children’s Hospital Colorado in hopes they would not release her until they figured out what was wrong. After a long week of many tests, the doctors diagnosed Mila with Batten Disease. Our hearts stopped. Our bodies went limp. We learned Batten is a neurodegenerative disease which leaves children blind, cognitively impaired and bed-ridden before they die at a young age. We were told there is no cure for Batten... yet. But we also learned that very recent genetic therapies were showing great promise. So we started a foundation and set out on a race against time to find and fund a path to a cure for Mila, in hopes of paving a new path for hundreds of other rare diseases.</image:caption>
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    <loc>https://www.milasmiracle.org/partners</loc>
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    <lastmod>2017-10-10</lastmod>
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      <image:title>Our Partners</image:title>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1507670309712-EMZULA9D0IPVI18G8SHW/Snip20171010_129.png</image:loc>
      <image:title>Our Partners</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1507673429156-GOEBXWIUMJ81E50CJVF6/tuckernuck.png</image:loc>
      <image:title>Our Partners</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1507670253546-HQW8G1ILV747DCQHCICJ/Snip20171010_128.png</image:loc>
      <image:title>Our Partners</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1507673740547-X68056PT54PEOQDQEHBV/18581772_1734105500220405_1323325761471662216_n.jpg</image:loc>
      <image:title>Our Partners</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/milastribe</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2020-06-15</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1514914360951-WYS570N8DS6CSU537FTR/Mila%27s+Tribe+2.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717578598-J9NM0T0OMS0Z1S3ETUDD/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018..jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>World renowned Ad agency, Crispin Porter + Bogusky, together with good friends Dave and Jen, came into our house just weeks after Mila was diagnosed with a film crew and spent hundreds of hours editing our video - without this video the world wouldn't have been able to "know" Mila and be moved enough to help us.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717439405-7GE8XRBEDQJ6EUTHSY6S/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.4.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Good friend Heather organized an online children's book sale connecting us with old and new friends, with all proceeds going to our fight.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717295296-FDZANOH1SVOW6P8SD3BY/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.7.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Extraordinarily talented and vivacious pianist Sarah H read about Mila in our local paper and offered the beauty of the piano to engage Mila's senses.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717128763-1IJH07XJT1NZD07XZV0L/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.10.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Mila’s neighbors, Ellen and Nicole, decorated donation jars and joined efforts with their Montessori school to raise money and bring awareness to our cause.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527716951620-RXA4AFVHTRJM9JP76LCQ/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.13.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Mantra rock band, Katie Wise &amp; Bhakti Explosion, held a beautiful kirtan concert at Shine Gathering Place for us that moved the body and soul - with special guest Mila!</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717629780-3W9OTDH33PP2QL7XDTTY/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.16.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Led by friends Eliana and Linda, the Colorado Governor's wife and top chefs offered an elegant evening to benefit us.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717803075-YFOPXVPBRSYNY3PQOR0J/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.19.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Friends Zoey and Trent and their family restaurant dedicated the month of May to Mila with proceeds, posters and shout outs to help us spread the word!</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717940426-73Z7XJMSFNSYH8QHQDNW/Mila%27s+Tribe+Website+Images+1.5.17.Add+Ons29.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Optoro founders, Mila's uncle Adam and friend Tobin, raced along side us to help us get traction by graciously sponsoring our DC gala and donating items to our numerous auctions.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527718071918-64VH0A8SGBRARPZR17K0/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.25.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Suzanne was instantly ready to help as soon as she attended one of our benefits, travelling and shooting footage for us for a future video.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527718413271-P3PCK03TKF6XDJ3QSJ8M/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.28.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Charity Miles founder, Gene, was so moved by Mila's story that he flew out to Boulder to record a podcast interview with Mila's mom Julia which he blasted out to his hundreds of thousands of members.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527718832097-OLQ6VDZHT3I76DIC1U9R/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.31.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Old friends of Mila's mom from childhood offered a special promotion for our cause through their company Giant Microbes.</image:caption>
    </image:image>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527784275412-5OYKKDHAH0D00MWQAIDS/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.34.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
    </image:image>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527781204812-UFC2MLL6JBYL2FJEXJ73/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.37.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Mila's mom Julia hiked up Grays Peak to 14,278 ft together with other parents fighting for their kids with Batten Disease, including new friend and Batten pioneer Kristen.</image:caption>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782096815-UOFG9UPWX1D4H4GHE4V5/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.40.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Mila's mom Julia was invited to speak on a panel discussing the role of power, with promotion and proceeds going to our fight.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782236331-3BR9VA5A8RMWZSJY459O/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.43.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>This British watch company heard about Mila and nicely promoted our story to their customers and offered us proceeds.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782396852-1KNKTFARDPPYTNNRH0XX/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.46.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>MECHA gym owners Kate and Josh stood up tall to fight along side us, sharing Mila's story with their members and friends.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782566050-TJHLR7J2JDBY5Z20ZDUJ/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.49.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>1st grade Girl Scouts from Colorado Daisy Troop ran the bake sale at the Jeff &amp; Paige Benefit Concert and raised $690 for us!</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527783023828-9FTSHW1MXNP9TNXEO5QF/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.52.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>New friend Christina heard about Mila and ran the NYC Marathon on Nov. 5th raising thousands, in honor of Mila's 7th Birthday.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527783182115-1HGJ167GSJUFDWC1Q01D/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.55.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527783399276-599OWNARUXUTPJYPQVFI/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.58.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Collins Elementary, just outside Chicago, was so moved by Mila's story that they dedicated their Service Learning project to her!</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527783587851-P9RRLEMU896AXSYTZMJI/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.61.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Fifteen families and 2 bakeries, led by Mila's biggest supporter Dana, baked, packaged and delivered 800 boxes of holiday cookies in one weekend!</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1528131308670-EHP4MEA4V35CAB8C81S2/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.64.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>These amazing friends asked all of their guests to donate to our foundation in lieu of gifts. We are humbled by their generous and thoughtful gesture!</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1589829377666-LHF6I9EIRMO3G7JGZJSC/Mila%27s+Tribe+Website+Tile+Images_New+Tiles_05.18.2020..png</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Thank you to local chef, Linda Hampsten of The Bindery, Room &amp; Board Denver and The Family Jones Spirit House for hosting a rooftop Cookbook Release Party to help raise funds for MMF.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717534592-NV4CXQ5L8KJ9AM9Z8SP6/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.2.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Professional photographer and friend Julie spent time with our family on many occasions to document the love and hope in our home since Mila's diagnosis.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717387870-69T3Y4GVMLAZKYLBYVZD/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.5.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>The Italian community in Denver gathered around good food and wine for a benefit dinner at Parisi restaurant.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717249005-XFPK5706HS01IC3Q8DLL/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.8.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Old friend Clare teamed up with one of our favorite kids clothing companies, Tea Collection, to raise money and awareness.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717069812-IF2K83AGF2INX037HOZ6/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.11.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>NY friend Margaret teamed up with hip Brooklyn bar to gather Mila supporters around craft beers and share our cause.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527716764180-IUGLHAVM8OHRF613CK1U/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.14.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>One of Mila's dedicated friends, Chloe, inspired her school to learn about Batten Disease and join our fight. She often closes her eyes to feel what it's like to be Mila.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717678187-ICZQ6F7389ZE2PF99CDX/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.17.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Bakery owners Kim &amp; Jake who "met" Mila in birthing class before she was even born, have fought all year by our side - providing delicious gluten-free desserts at FIVE events and rallying restaurants, auction donors and friends and family.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717847446-67YEJPBUL7C14RZXH1BI/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.20.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Over 20 top DC chefs and mixologists stood up to fight Batten Disease at this happening gala that gathered hundreds.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717982028-012X8M47ZTDRHEKEHIQT/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.23.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Our amazing Boulder community showed up to support us over tastings from 25 top chefs at ad agency CP+B's headquarters.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527718129448-UDSM3404A00DQS8SZ6EI/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.26.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Chef and cyclist, Fabio, donated private cooking classes to our auctions and included our foundation logo on his cycling tour jerseys.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527718493751-0XQPA9FACHCQSYUTKB20/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.29.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Love, Faith, Believe - perfectly appropriate mantras on necklaces from nikscandi, with all proceeds given to our foundation.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527719034406-FYYC23RQJ24GOCVDB3BW/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.32.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Local Sweet Cow ice cream chain blasted Mila's story out to their followers and gave proceeds from tables at a popular festival.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527719585761-UTMTF527ET0NTDO7HMHX/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.35.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Renowned Iyengar yoga teacher, Laura, met Mila and has since created a deep connection with her through a unique restorative approach to neurological disease in children.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527781422706-5CT1BQRFE16WQT6UH7O0/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.38.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>BFF Julie and her amazing Atlanta CycleBar community rode hard and fought hard for Mila and her treatment.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782138088-96FJR4DGCQE5OH17VNTU/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.41.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Kind friend Jenna organized a surprise visit of Mila's favorite Frozen characters, Elsa and Kristoff - a highlight of Mila's year!</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1589829861692-L8BL4I8MFXG9698X75F8/Mila%27s+Tribe+Website+Tile+Images_New+Tiles_05.18.2020.4.png</image:loc>
      <image:title>Mila's Tribe</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527784697372-LBW2N2OGAHFRW44SICDI/B_Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.44.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Mila’s cousin Mary utilized her travels around the US by spreading Mila's story to strangers on video one hug at a time.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782455257-EILD3PSRURJI4VBILWJW/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.47.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Corporate jet company, Flexjet, heard Mila's story and kindly offered to transport our entire family to Boston's hospital.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782609461-FOH28V5CUIDY0DXC43RI/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.50.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527783079097-420LHO17HWNSTQ53CBHH/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.53.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>4th grade Girl Scouts from Colorado's Bear Creek Troop 73017 held a bake sale for our cause and earned their service badges!</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527783255500-084KEZHHSHDL66LENN62/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.56.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Sunflower Farm, where Mila spent much of her childhood, graciously offered a Family Harvest Festival around the campfire, together with holiday photo sessions by new friend and photographer Natasha.</image:caption>
    </image:image>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527783463163-G0XX5SNNLV3LOFEZ72IK/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.59.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Keri, who has known Mila since birth, organizes regular Yin Yoga sessions at her home with much love in support of Mila.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527783697499-CVB180OAP3Q77UTYBI0M/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.62.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>New friends Clara and Letti hand-made Christmas ornaments, selling them to friends and family, which raised us money and awareness!</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1589829713988-B4KF72C21I1ZJ0KG4R8O/Mila%27s+Tribe+Website+Tile+Images_New+Tiles_05.18.2020.2.png</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>We're so proud of Mila's friend Dana Perella for receiving the Global Genes 2019 Rising Star Award because of her unwavering dedication to fighting for Mila, raising over $100K for Batten, PANS and SMA through her own foundation, Cookies4Cures.</image:caption>
    </image:image>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Local Fior Gelateria owners, Giulia + Bryce, dedicated their grand opening to us, with creamy gelato for Mila and friends, and all sales funding our trials.</image:caption>
    </image:image>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717349609-1DAWY5I0437SA2SBB4YE/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.6.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Front Range Hippotherapy heard of Mila's fight and offered weekly riding sessions to keep her strong and stimulate her senses.</image:caption>
    </image:image>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Numerous friends from around the country - Meredith, Margaret, Kandy, Katherine, Imani, Christina, Kristen - pitched our story to the media to get the word out.</image:caption>
    </image:image>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527717023439-OC6B3EHMNU3OUO0BEAHI/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.12.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Colorado's Broomfield High School dedicated their school-wide Wish-Week to Mila, including a teacher basketball game that gathered thousands and local media.</image:caption>
    </image:image>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Chef and Bindery owner, Linda, heard about Mila as soon as she was diagnosed and provided incredible meals and great staff at our Denver and Boulder benefits.</image:caption>
    </image:image>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Mila's aunt Sophie and her fashion company dedicated proceeds and a social media campaign to Mila and our cause!</image:caption>
    </image:image>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>James Beard Award-winning Chef and old friend of Mila's mom, Gerard, flew to DC to rally the city's best chefs and cook up tasty dishes together for our Stop Batten benefit.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Over twenty Mila's Miracle teams stood out at one of the world's largest races, with 50K people, to help us raise money and awareness for Batten Disease.</image:caption>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Good friend Giulia brought together local families at Mod Market for an evening of friends and food to benefit our foundation.</image:caption>
    </image:image>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>LA sisters and old friends Mary and Lucy dedicated perfume sales and healing mantras from their appropriately named company, Wild Precious Life.</image:caption>
    </image:image>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Old friends, Penny and Tilda, hand-made fresh lemonade and cookies and invited everyone they knew for their friend Mila!</image:caption>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>New friend Jenna and her family have rallied all year by our side - this time offering lemonade and treats to help us!</image:caption>
    </image:image>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Mila's old friend from stuttering therapy, Dana &amp; her brother Carson, baked cookies every week and dragged their wagon door-to-door for months. They turned their first $1K into a GoFundMe campaign for Mila which raised over $50K in just one month!</image:caption>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782188430-2SUIH62RTZU803DN06JJ/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.42.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Since launching our campaign, the GoFundMe headquarters have stepped up to help get our story out to the masses.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782353777-64J3TDB9LZAB4RRLWG2H/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.45.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>As birthing coach and doula, Katie welcomed Mila into the world - now she fights for her life through music, and dedicated her album to Mila's benefit concert.</image:caption>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782495045-BUGLNZGMLYLRJQJJQ38H/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.48.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Local celebrity musicians Jeff &amp; Paige have fought hard for Mila by sharing her story at events and online to fans, and hosting a large family concert benefiting us!</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527782977235-UMZSTCS7GSB6QWTF3SJ7/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.51.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Dream Makers preschool has welcomed Mila and Azlan with open arms, always conscious of making Mila feel normal and loved, and supporting our fundraising in every way that they can.</image:caption>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1527783135084-D1BG9E62GIBWNYFAHTG3/Reform_Mila%27s+Tribe+Website+Tile+Images_Final+No+Dates_05.03.2018.54.jpg</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>Dedicated friends Kate and Josh, together with the Laudisio family and Mateo restaurant, hosted an evening of fine food and wine for Mila's cause.</image:caption>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Local photographer and mom Natasha set up family photo sessions at numerous events and put all proceeds toward our trial.</image:caption>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Minnesota's Torch sauce founder Jesse stumbled upon Mila's story and immediately rallied his customers to help us!</image:caption>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Local law firm owners John and Peter kindly offered us proceeds and invited other local firms to join their efforts.</image:caption>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1589829773658-G44A1NJ7JJQ5M6MIKIQ3/Mila%27s+Tribe+Website+Tile+Images_New+Tiles_05.18.2020.3.png</image:loc>
      <image:title>Mila's Tribe</image:title>
      <image:caption>My dream of gathering our family and friends around Mila and singing her favorite songs outdoors came true. This first annual gathering beautifully combined Mila's love of people, nature and music.</image:caption>
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      <image:title>Mila's Tribe</image:title>
      <image:caption>Good friends Giulia and Bryce of Gelato Boy launched “Gelato for Good” with Mila in mind. Using Mila’s artwork &amp; inspired by her favorite mango flavor, Mila’s Miracle Mango Lassi is being delivered around the country!</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Media - Science Magazine</image:title>
      <image:caption>“Drug tailored to one girl with brain disease paves way for similar customized treatments”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983553291-G90T1TDZCWVSIT76FKRW/MediaLogos_Website_National_01.png</image:loc>
      <image:title>Media - The New England Journal of Medicine</image:title>
      <image:caption>“Drug Regulation in the Era of Individualized Therapies”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983882060-5QNY10TB542Q8CE2H4K8/MediaLogos_Website_National_03.jpg</image:loc>
      <image:title>Media - The New York Times</image:title>
      <image:caption>“Scientists Designed a Drug for Just One Patient. Her Name Is Mila.”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1690561037147-J14C5A1UIQHF4HY5T0V5/EndpointsNews_logo.jpeg</image:loc>
      <image:title>Media - Endpoints News</image:title>
      <image:caption>“'This is not a science problem anymore': Paths emerge for scaling up rare disease medicine”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1573231940935-4PQXY38BHTI4O27DQYL7/MediaLogos_Website_National_02.png</image:loc>
      <image:title>Media - NIH Director’s Blog</image:title>
      <image:caption>“One Little Girl's Story Highlights the Promise of Precision Medicine”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1573231952493-MHA9H6IZ5XP3OIWOWXW7/MediaLogos_Website_National_v07.png</image:loc>
      <image:title>Media - MIT Technology Review</image:title>
      <image:caption>“This girl’s dramatic story shows hyper-personalized medicine is possible—and costly”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1573231964659-GHAJGG8S623BDXJ0RRGL/MediaLogos_Website_National_v08.png</image:loc>
      <image:title>Media - STAT</image:title>
      <image:caption>“After a bespoke therapy rescues a young girl, the FDA considers advance of individualized treatments”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1573232186481-00EQ1KIID4VUYLVPBWF5/MediaLogos_Website_National_06.jpg</image:loc>
      <image:title>Media - Chemical &amp;amp; Engineering News</image:title>
      <image:caption>“Milasen: The drug that went from idea to injection in 10 months”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1573232355480-UKEUTOGRD05QXRTYE4MV/MediaLogos_Website_International_v2_0.png</image:loc>
      <image:title>Media - Corriere della Sera</image:title>
      <image:caption>“Farmaco creato per una sola paziente Mila, 8 anni, ha la malattia di Batten”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983139276-1A4UKV111URTSP6ZSK1W/MediaLogos_Website_International_02.png</image:loc>
      <image:title>Media - BBC News</image:title>
      <image:caption>“Batten disease girl given custom-made drug”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1573232355562-5B5IEO7L964M9B429HFB/MediaLogos_Website_International_v2_03.png</image:loc>
      <image:title>Media - Le Monde</image:title>
      <image:caption>“Un traitement ultra-personnalisé pour une fillette souffrant d’une maladie génétique rare”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1690561673338-VG253ZSWT613JCIC5IE7/The_Economist-Logo.wine.png</image:loc>
      <image:title>Media - The Economist</image:title>
      <image:caption>“The world’s first pathway for individually designed drugs”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1573232356108-9HFDCHPJT8J165FS5P2C/MediaLogos_Website_International_v2_05.png</image:loc>
      <image:title>Media - Caixin</image:title>
      <image:caption>“解药｜世界首例个人定制药物是如何问世的”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983134634-MKU0OPU7FE7V83PA9M8C/MediaLogos_Website_International_06.png</image:loc>
      <image:title>Media - Süddeutsche Zeitung</image:title>
      <image:caption>“Ein Medikament nur für Mila”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1748015012459-VW4G7CHIOI72E4VM9X9G/Nature%2BMedicine%2B-%2BFull%2BCover.png</image:loc>
      <image:title>Media</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1748015016764-SI5FF24PM5VRFXDQ47GE/NEJM_journal%2Bcover.png</image:loc>
      <image:title>Media</image:title>
      <image:caption />
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    <image:image>
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      <image:title>Media</image:title>
      <image:caption />
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    <image:image>
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      <image:title>Media</image:title>
      <image:caption />
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    <image:image>
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      <image:title>Media</image:title>
      <image:caption />
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1693425235008-XDLETY35UBL7CRX0G1JS/the+future+of+medicine_book+cover.jpeg</image:loc>
      <image:title>Media</image:title>
      <image:caption />
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1693425727305-DD6TQOT8FPVHGBDXGITP/JCI_Isssue_journal+cover.jpeg</image:loc>
      <image:title>Media</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1598883589694-P1SGTSRWISG1ZPH0W6M1/MMF-Logo_Media-Asset_PNG-24.png</image:loc>
      <image:title>Media</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/media-press</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2019-11-06</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572986720614-ETMX69L35QXXGSPA1TB4/MediaMashup_STAT.png</image:loc>
      <image:title>Media-2 DRAFT</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572985791025-E8H6F3PB7S5I2FLU2BHI/MediaMashup_NEJM_OriginalArticle.png</image:loc>
      <image:title>Media-2 DRAFT</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572987898344-XUTE5OOPZSNTPUDIASKN/MediaMashup_Web_BBC.png</image:loc>
      <image:title>Media-2 DRAFT</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572981199761-A2CU7SA9U35SKVD1YMG1/MediaLogos_Website_National_02.png</image:loc>
      <image:title>Media-2 DRAFT - Copy of NIH Director’s Blog</image:title>
      <image:caption>“One Little Girl's Story Highlights the Promise of Precision Medicine”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983553291-G90T1TDZCWVSIT76FKRW/MediaLogos_Website_National_01.png</image:loc>
      <image:title>Media-2 DRAFT - Copy of The New England Journal of Medicine</image:title>
      <image:caption>“Drug Regulation in the Era of Individualized Therapies”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983882060-5QNY10TB542Q8CE2H4K8/MediaLogos_Website_National_03.jpg</image:loc>
      <image:title>Media-2 DRAFT - Copy of The New York Times</image:title>
      <image:caption>“Scientists Designed a Drug for Just One Patient. Her Name Is Mila.”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572981197020-0YLBXWDT4KGULOOLBRAM/MediaLogos_Website_National_05.png</image:loc>
      <image:title>Media-2 DRAFT - Copy of Science Magazine</image:title>
      <image:caption>“Drug tailored to one girl with brain disease paves way for similar customized treatments”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572982764926-Q45F6UZO0ZJK6WGZ8JC5/MediaLogos_Website_National_v07.png</image:loc>
      <image:title>Media-2 DRAFT - Copy of MIT Technology Review</image:title>
      <image:caption>“This girl’s dramatic story shows hyper-personalized medicine is possible—and costly”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572981197932-EOSH08FKPEFN59LLF2GT/MediaLogos_Website_National_06.png</image:loc>
      <image:title>Media-2 DRAFT - Copy of Chemical &amp;amp; Engineering News</image:title>
      <image:caption>“Milasen: The drug that went from idea to injection in 10 months”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983140112-G6G022ZLNOJ72I11L67L/MediaLogos_Website_International_01.png</image:loc>
      <image:title>Media-2 DRAFT - Copy of La Repubblica</image:title>
      <image:caption>“Per la prima volta messo a punto farmaco per un singolo paziente”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983139276-1A4UKV111URTSP6ZSK1W/MediaLogos_Website_International_02.png</image:loc>
      <image:title>Media-2 DRAFT - Copy of BBC News</image:title>
      <image:caption>“Batten disease girl given custom-made drug”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983139277-K68VSTPYIA0GIYBA35ZA/MediaLogos_Website_International_03.png</image:loc>
      <image:title>Media-2 DRAFT - Copy of Daily Mail</image:title>
      <image:caption>“'She's still herself': Girl, 8, left blind and mute by an incurable rare brain disease is the first patient to get a drug tailor-made - and named - for her in historic step for personal medicine”</image:caption>
    </image:image>
    <image:image>
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      <image:title>Media-2 DRAFT - Copy of de Volkskrant</image:title>
      <image:caption>"Amerikaanse artsen maken genetisch medicijn voor één meisje"</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983134268-AYWM6VC7DDUDXFA86XYX/MediaLogos_Website_International_05.png</image:loc>
      <image:title>Media-2 DRAFT - Copy of ABC España</image:title>
      <image:caption>“Milasen: el primer fármaco ‘personalizado’ que salva a la niña con una enfermedad cerebral mortal”</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1572983134634-MKU0OPU7FE7V83PA9M8C/MediaLogos_Website_International_06.png</image:loc>
      <image:title>Media-2 DRAFT - Copy of Süddeutsche Zeitung</image:title>
      <image:caption>“Ein Medikament nur für Mila”</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/media-archives</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-04-02</lastmod>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/media-archives-1</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2019-12-12</lastmod>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/my-rare-is-common</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2020-09-07</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1599520268914-A3ANQOMK9H535KZB3M7S/lifeproject_090120_009.jpg</image:loc>
      <image:title>My Rare is Common</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/julia-vitarello</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-04-02</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1601321000043-B8G81BLIJG6JO7L9OPLH/GJ0A7469_bw.jpg</image:loc>
      <image:title>Julia Vitarello</image:title>
      <image:caption>Julia Vitarello</image:caption>
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  </url>
  <url>
    <loc>https://www.milasmiracle.org/this-is-today-draft</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2021-02-11</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600464097769-QQ80MSHGBONRFO2VV8S6/BlackBox.jpg</image:loc>
      <image:title>This is Today draft - THIS IS TODAY</image:title>
      <image:caption>My daughter Mila turned six, surrounded by friends and laughter. Later that month, she saw my face for the last time and was diagnosed with a rare and fatal disease. Life as I had known it ended. I fought for her life. During my struggle, I met a mother who had lost her 7-year-old son in an accident. When I asked how she made it through life, she replied, “I talk about him”. And so I began talking and writing about Mila while she is still with me. I let the world into the turmoil of my thoughts, the closet of my hopes and fears. I am vulnerable. But this is me. This is my today. This is today.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600392910041-RE7K220C0GFQXN1WHHTQ/lifeproject__008.jpg</image:loc>
      <image:title>This is Today draft - Andiamo</image:title>
      <image:caption>Ready, set, let’s go.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600392930887-OEGUVPCXVONF4BBUYEN6/lifeproject__011.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600392949235-A5BK9LQCB6HP7Q47KEBU/lifeproject__016.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600392965902-6Z4SPM593IC1O4EQV3DB/lifeproject__019.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600392980026-E5OB7P35PVMDUZWJ9SJ3/lifeproject__028.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600392996856-KCX8LJU3CIQOLXQ4ZH65/lifeproject__034.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600393012830-XRQYH49C7SFHGHRO07NP/lifeproject__043.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600393030862-S90NJ21SRTE3QKLCGPZ6/lifeproject__009.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600393047540-4MRBNCYSU2S33N4WH3KY/lifeproject__014.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600393065379-LSEPVGGGVWH5MHIJQKUV/lifeproject__015.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600393081080-NFXE8AT8KFP5ZN8W9JA6/lifeproject__017.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600393098061-SY1OGDN98AXWYJP5FF26/lifeproject__034+%281%29.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600393115227-5QCRWAVT5LBY3VEEFUGM/lifeproject__046.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600393135405-GIIGAWENSLOZ331QXI6Q/lifeproject__004.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1600393315929-I1NMUEFRI8M1ZWX0V3RU/lifeproject__001.jpg</image:loc>
      <image:title>This is Today draft</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/a-tribute-to-mila-bug</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2021-03-17</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1611855121382-RG5WX7CVUD2UW678EM78/makovec0617_069.jpg</image:loc>
      <image:title>Tribute to Mila Bug</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1611598626797-LHZA00MLUIXJSAKVTIUU/JV_E-Signature.jpg</image:loc>
      <image:title>Tribute to Mila Bug</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1611854260655-NX2VPM3CJWVD6FKH55FL/makovec112517_036.jpg</image:loc>
      <image:title>Tribute to Mila Bug</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/a-tribute-to-mila-3</loc>
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    <priority>0.75</priority>
    <lastmod>2021-01-28</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1611855121382-RG5WX7CVUD2UW678EM78/makovec0617_069.jpg</image:loc>
      <image:title>A Tribute to Mila #3</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1611598626797-LHZA00MLUIXJSAKVTIUU/JV_E-Signature.jpg</image:loc>
      <image:title>A Tribute to Mila #3</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1611854260655-NX2VPM3CJWVD6FKH55FL/makovec112517_036.jpg</image:loc>
      <image:title>A Tribute to Mila #3</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/this-is-today</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2021-02-11</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066849486-SMW9FPABZ29ZSJM0W95O/Copy+of+091420_021.jpg</image:loc>
      <image:title>This is Today</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1611598626797-LHZA00MLUIXJSAKVTIUU/JV_E-Signature.jpg</image:loc>
      <image:title>This is Today</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613067604819-VKY478ADBOF6LL6BPDUF/Copy+of+Copy+of+thisistoday_092120_017+%281%29.jpg</image:loc>
      <image:title>This is Today - THIS IS ME.</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066857922-CCPQIEC7DSP8DV95OWQ2/Copy+of+Copy+of+thisistoday_092120_033+%282%29.jpg</image:loc>
      <image:title>This is Today</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066835770-MBCF3UT9OHWP4F3SS7NR/Copy+of+thisistoday_100220_002.jpg</image:loc>
      <image:title>This is Today - THIS IS MILA.</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066868128-9XR1IUKW2CJKLO9RW2AW/lifeproject__043+%281%29.jpg</image:loc>
      <image:title>This is Today</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066841290-DSK71X7GXJ3VQIDS5VI2/Copy+of+Copy+of+thisistoday_091920_016+%281%29.jpg</image:loc>
      <image:title>This is Today - THIS IS AZLAN.</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066835779-IZGDFT4TBWJ062LOPXMH/thisislife_110620_009+%281%29.jpg</image:loc>
      <image:title>This is Today</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066842823-0SM0H4E6Q0RF56CH014I/Copy+of+091420_026+%281%29.jpg</image:loc>
      <image:title>This is Today - THIS IS MY TODAY.</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066864602-OYYZWV287CYXDTM3E54K/lifeproject__046+%282%29.jpg</image:loc>
      <image:title>This is Today</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/blogs</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2022-02-09</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066857922-CCPQIEC7DSP8DV95OWQ2/Copy+of+Copy+of+thisistoday_092120_033+%282%29.jpg</image:loc>
      <image:title>Blogs</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1611598626797-LHZA00MLUIXJSAKVTIUU/JV_E-Signature.jpg</image:loc>
      <image:title>Blogs - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066864602-OYYZWV287CYXDTM3E54K/lifeproject__046+%282%29.jpg</image:loc>
      <image:title>Blogs</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/your-tribute-to-mila</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2021-02-18</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613670729318-E6XXOB4HK5IGMGMR87FQ/makovec0617_069.jpg</image:loc>
      <image:title>Your Tribute to Mila (Email Button)</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1611854260655-NX2VPM3CJWVD6FKH55FL/makovec112517_036.jpg</image:loc>
      <image:title>Your Tribute to Mila (Email Button)</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/chc-batten-clinic</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2022-02-22</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1618411860086-HP2802BXBPE0LTAN8O42/CHCO+Anschutz+Campus.png</image:loc>
      <image:title>CHC Batten Clinic</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1619037550791-C7UM9NWKNVWEQ37GI2KC/FullSizeRender-preview.JPG</image:loc>
      <image:title>CHC Batten Clinic</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1618411002765-ON3Y9ZXTCEZIZKDZBD92/BNDP%252BMeet%252BThe%252BTeam.jpg</image:loc>
      <image:title>CHC Batten Clinic</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1618412042599-X3JREJOWIPDJK73CAV47/CHCO+Logo.png</image:loc>
      <image:title>CHC Batten Clinic</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1618412072316-JB309UFD12ILSYAC78BF/MMF+Stop+Batten+Logo_Transparent.png</image:loc>
      <image:title>CHC Batten Clinic</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1618412042840-LXLIZCIGKPCDYTXNP5MI/RSBF+Logo.png</image:loc>
      <image:title>CHC Batten Clinic</image:title>
      <image:caption />
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/donate-mentor</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2022-02-17</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5797de498419c2b3b97221ba/1473695876221-Q9R4CXJHIUL9ELMCRLZ8/donate-p1423864649-6-2500x3333.jpg</image:loc>
      <image:title>Donate</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5797de498419c2b3b97221ba/1473695625815-RE1LJ8GNLPBIMJF85QZ0/donate-p1423857195-6-2500x3333.jpg</image:loc>
      <image:title>Donate</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5797de498419c2b3b97221ba/1473695644654-KOVIBSZPO68PRFRPC1TM/home-p1423939271-6-2500x3333-tones-1.jpg</image:loc>
      <image:title>Donate</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/publications-list</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2025-05-23</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1748015012459-VW4G7CHIOI72E4VM9X9G/Nature%2BMedicine%2B-%2BFull%2BCover.png</image:loc>
      <image:title>Publications List - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1693425197027-BTWTLSD3VLPCGY4UEUUF/cpt.v114.3.cover.jpg</image:loc>
      <image:title>Publications List - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1693425204578-3RK0D6VNSMBZDJRKID20/NEJM_journal+cover.png</image:loc>
      <image:title>Publications List - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1693425727305-DD6TQOT8FPVHGBDXGITP/JCI_Isssue_journal+cover.jpeg</image:loc>
      <image:title>Publications List - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1693425217962-2NF8DVTKQ0I14NPE3DAP/precision+medicine+in+pediatric+health_book-cover.jpeg</image:loc>
      <image:title>Publications List - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1693425235008-XDLETY35UBL7CRX0G1JS/the+future+of+medicine_book+cover.jpeg</image:loc>
      <image:title>Publications List - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1693425306512-JI6OGOZG6S9PZIYJA699/inside+the+orphan+drug+revolution_book+cover.jpeg</image:loc>
      <image:title>Publications List - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/mila-to-millions</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2024-05-09</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/9f632760-7f29-4d1c-95b2-a77ec5824cdd/Mila+w.+toy+piano+%281%29.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1645117413177-XW5ZW6YOTIX97H3HTGIR/Julia-Vitarello_Woolf_24-768x432.png</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1570557543277-OZNKN2R43OSM7M1IF291/Dr.+Yu+%2B+Julia+%2B+Mila+on+the+first+day+of+Mila%E2%80%99s+treatment+.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/fde6c587-0ea3-455e-96d7-7562f73143d4/makovec_0918_010.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/58f39757-8ab9-4f3f-97d1-86853224918a/1.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/f95534df-f969-4131-87fd-a0bd7cfbe5a2/2.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066864602-OYYZWV287CYXDTM3E54K/lifeproject__046+%282%29.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1613066868128-9XR1IUKW2CJKLO9RW2AW/lifeproject__043+%281%29.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/94320e27-effc-43b3-b360-2bb257dafca1/today_slide_08+%282%29.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/8166bea1-5bfe-4cf5-9aba-5886b8bd34f0/today_slide_05.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/2d45139d-dc64-45ca-bb4d-6b130a1fa91e/Grays_14+%281%29.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/92a07130-0259-4bcd-aec3-0de8f2b66592/image-asset.jpg</image:loc>
      <image:title>Mila to Millions - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/little-legacies</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2025-11-10</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728349599727-VJUTR2G9FFGFUBBKLMJ7/thisistoday_111020_027%2B%25281%2529.jpg</image:loc>
      <image:title>Little Legacies</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/9947a365-ef08-4a6b-bc1d-029c74b72e04/LL+Family+Forum+Web+Graphic.png</image:loc>
      <image:title>Little Legacies - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/e249d6b8-bb03-4cbb-99d1-c4e52c17678f/Screenshot+2025-10-30+at+10.09.14%E2%80%AFAM.png</image:loc>
      <image:title>Little Legacies - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/895c4ee6-b19d-442d-b801-cd9356810889/makovec112517_010+%281%29.jpg</image:loc>
      <image:title>Little Legacies - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728599034390-5SXZKKVHQ2OEKTBGA2ML/Margaret.png</image:loc>
      <image:title>Little Legacies</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728599037382-BI7UC83J2FKCIAUJECG4/Tim.png</image:loc>
      <image:title>Little Legacies</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728599037974-PH2H167I836MLIS441JT/Tish.png</image:loc>
      <image:title>Little Legacies</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728599039229-87DCJPZJESNU0TOIW3R3/Tom.png</image:loc>
      <image:title>Little Legacies</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728599034567-FWH7NHEF6P4V7CUT6KBS/Julia.png</image:loc>
      <image:title>Little Legacies</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728484652035-DBHSQSI80LI13ASBMYAR/MMF+Logo+-+square.png</image:loc>
      <image:title>Little Legacies</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728484651197-QXVB1UT69AXAKNLJPS3Y/BCH+Logo+-+square.png</image:loc>
      <image:title>Little Legacies</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728484652958-DSUII6TWEKJMZZ5CWW1G/UMD+Logo+-+square.png</image:loc>
      <image:title>Little Legacies</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728497524675-XKO04L6NY1C5G2I8UX8I/Screen%2BShot%2B2024-10-09%2Bat%2B2.09.30%2BPM.jpg</image:loc>
      <image:title>Little Legacies</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/1728484651022-4J5LFKVU2P97WEYVPVA4/BCH+Logo+-+square+%282%29.png</image:loc>
      <image:title>Little Legacies</image:title>
      <image:caption />
    </image:image>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/little-legacies-contact-form</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2024-11-13</lastmod>
  </url>
  <url>
    <loc>https://www.milasmiracle.org/stat-oped</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2025-06-02</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5858966ce4fcb586c80aab10/7a15dbed-645c-4e6f-893b-69a6b626d47d/STAT_Genetic+Surgery+Op-Ed_Cover+Image.png</image:loc>
      <image:title>STAT Op-Ed - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
  </url>
</urlset>

